Connect with our local chapter:

We are a Chapter of the Huntington's Disease Society of America, a national, not-for-profit voluntary health agency based in the Eastern Pennsylvania area.  The purpose of our chapter is:
  • To help individuals affected by Huntington's disease (HD) and their families through support and services
  • To educate both the public and health care professionals about Huntington's disease 
  • To promote and support research directed at discovering a treatment and ultimately a cure for Huntington's disease. 
While there is still no cure for HD, today there is more hope than ever that we can beat this disease.  Until then, our volunteers will strive to provide support and sustence to our HD families, knowing that while research provides hope for the future, we must provide care for HD community today.  We have become an active community, educating ourselves, sharing information, and advocating for ourselves and our loved ones. 

The Eastern PA Chapter currently meets at various locations around the area in person, as well as by phone.  We are actively welcoming new volunteers to join us in furthering our mission to improve the lives of those affected by Huntington's disease. 

Current volunteer needs include Board members, organizing committee members for the upcoming Team Hope Walk and general and administrative duties.  Some tasks can be done by computer, remotely.  If you would like to volunteer some of your time please contact:

Huntington’s Disease Society of America, Eastern Pennsylvania Chapter
PO Box 1606
Bensalem, PA 19020

Chapter President: Jennifer Ruggiano 
Vice President: Jessica Tursi
Secretary: Melanie Rehm
Treasurer: John Elmendorf 

Social Worker: Shannon Morgan MSS
HD Help Line: 540-247-4536

Dania Sargent
Mid-Atlantic Regional Director
P: 540-431-8573